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Thursday, May 15, 2014

Another month closer to HSCT ...

Oh my Goodness, time flies.

For the ones wondering how my 'Inner Easter Bunny' did ... well .. he did ... lol. In the end and dark of the night he ended up just tossing the eggs on the flowerbeds or wherever they fell .. oh well. They were all found with joy the next morning so life is good. Maybe next year they'll be positioned with more care and love lol. But believe me, it was a work of love just to get out wearing my husband's enormous boots, walk with the cane around the house, with a huge bag filled with chocolate eggs ... is there any greater love ??

Anyway ... we are in the middle of May now. In my efforts to not use all our funds for the treatment I had made sume rubber wristbands to start the fundraising. They'll be arriving next week. Two sweet friends have already agreed to have a container in their businesses so their clients can buy them ... fingers crossed. It's funny cause the message I printed in the wristbands are the same that titles this blog : flip the bird to MS. I guess selling them at my children's primary school is out of the question .. hahhahhaha, never thought of that.

Some other people sound so blessed and inspirational ... these words were the only ones that spoke to me. 'Flip the bird' ... 'kick it on the ass' ... maybe a bit violent but that's what I really feel when I think about it. I'll leave more inspirational sayings for better than me people .. hahha.

This week has been a blessing though. Had my good neighbour come for a tea on Monday and showed her around the house. She came right after we moved so the house had the old decor and boxes were everywhere. She had to find it in better shape now ... but just seeing her so impressed with the changes made me happy. You need to understand ... I don't need approval from people for something I think looks awesome (ahem) ... but boy it's great to hear how good things look. Besides, the only feedback I get (from hubby) is 'yeah, it looks fine' ... or sometimes just a nod ... men. Yesterday he was negotiating with me not to paint the garage doors.

You see, sometimes I try to include him in some changes I'll make, so I told him I was going to paint the garage doors the same colour of the trim (winter white). They are brown-poorly-painted-over-wood right now. But I found resistance ... so .. what will I do you're thinking ... well .. I'll wait until he goes away to work, paint the damn garage doors and he'll see them when he comes back .. lol. And he'll like them .. maybe fight it for a few weeks but in the end I'll convert him.

Wait ... I was saying this week has been a blessing, sorry. Got distracted.

This good friend that came Monday gave me a gift. We were chatting and having a tea (me a coffee) and she gives me this heavy plastic bag. She said she wanted to give me something ... I look at her puzzled .. what is it ? Well .... she gave me all the money she made selling hot chocolate a few nights before Christmas. See ? She and her husband put a lot of care in decorating the house and yard with Christmas lights and decorations. It's pretty amazing actually. Endless rows of cars drive every night since the begginning of December mostly to look at their display. All the others (which we include ourselves) just try not to look like the Grinch and put lights up .. but when you see people entering the court, it's at their house they are looking. It's beautiful. Well, one night in December their oldest girl gets in a Santa costume, signs are made, table is put outside and the pots with hot chocolate start pouring. Lot's of neighbours help. Myself and some of my children included. Money goes to charity !! It was a fun night. Cold but fun. Well .. in the end the charity wouldn't accept all the money they made cause 'it was too late' and they had 'already gave gifts to families in need'. What ?? So, she decided to keep the money and find a good cause.

I am the cause she chose.

Thank you from the bottom of my heart Julie.

One step closer to Russia.