Yes, another milestone done with !!
Yesterday I had my final dose of Tecfidera. A newer drug recommended by my Neurologist to delay the progression. I started taking it in December 2013. So after a year has gone I feel I can evaluate it. I had the common side effects, intense blushing, more common at the beginning. My face would just turn red and feel very hot for about 20-30 minutes. In the summer at least I could mask the symptoms with just feeling hot with the weather ... in the winter, not so much. Lol. I guess if I'm optimistic, I would say I didn't really have any relapses. No new MS symptoms which I appreciate. But also if I look on how I was a year ago, I feel my balance has slowly deteriorated, so has my walking. It's getting harder to go up the stairs and some falls that could have been serious have been luckily stopped through 'furniture/wall surfing' in the house. So, all in all ... not such a bad year. Thank you Tecfidera ... but now I officially FLIP it to you too .. off to the garbage you go !!
I have no fears to be off it. My body needs to be clean and be free of any of this for HSCT.
On a different front, another of my milestones has gone too. My littlest one turned 4. Big girl. No more babies in this house, just like that. It feels great but it's also a bit sad. Where does time go. I wish her first memories were of a Mom that can do everything with her. But she's grown accepting her Mom uses a cane, can't run or play catch. She's also learned that it's a great help to go get things for me upstairs, and she does it willingly, still .. lol. I can't teach her how to skate or run on the grass with her, but I can still tickle the hell out of her though .. hahhaa.
My 'bag to Moscow' has filled up slowly too. Found some instant noodle soup on sale. Santa brought me the adapter I'll need for my ipad and some slippers. Checked, checked and checked !! We're down to the basics now.
62 days ...
:)
Yes, Happy New Year everyone !!
This is my year !! I'm determined it will be a successful one. Full of adventures, chemo, baldness, less trips to the hairdresser (lol Julie), ups and downs, not a lot of sun (it seems I'll have to cover myself a bit), lots of happy tears, lots of hugs saying see you later, then more when meeting fellow HSCTers from all over the place, some more when I have to say good bye, and then the sweet ones when I come back home. There will be more, I've just been told I'll have my Dad and Stepmom visit me soon after I come back from Moscow. It will be their first time visiting me home in Canada. Even sweeter and I'm sure there will be more hugs there. I know there will be a lot of cyber hugs too. I feel support and good wishes are coming from everywhere. Such a good feeling.
This year started bright already. I can only imagine what's to come.
I tend to be in the positive side of things, and that's how I want to remain.
Finally got all the Christmas stuff put away, house looks like a house again. Can't wait until next November, when I have new energy to put up everything again. Who knows .. maybe I'll even feel like decorating the stair railings again, or put up all those extra little Christmas trees. This was not the year for any of that .. lol. I'm focused on not wasting my energy. Efficiency comes first.
For now I still need to go through some milestones here at home to start getting ready for my trip. Today is my 4 year old's birthday. Then in February it's my eldest's one. Then, the countdown for Russia is official.
I found out there's a sweet lady that will start treatment at the same time I will. Exciting.
Weather is cold too. I feel I'm training for temperatures in Moscow. Yesterday it was colder here than over there. A balmy -20. Nice. With that I'm also really hoping the end of March won't be this cold. I'm not expecting flowers or grass .. but if I can at least not travel with my winter jacket and boots I'm good. Yes people ... I'm packing my suitcase in my mind. Lol.
73 more days ...
So this is a short one. But I want to wish you all a great year. May it be full of blessings, laughter, happiness and new beginnings.
:)
