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Saturday, April 19, 2014

Pre Easter preparations ...

So ... all I can think right now is 'How am I going to 'deliver' the little chocolate eggs tonight' lol. That is my husband's job usually. Now we live in a bigger house with a bigger backyard. And I'll have to wait til everyone is asleep to go walk around the house. I'm just trying to laugh at this and mentally prepare to NOT FORGET. Can you imagine ? Tomorrow morning and having a panic attack when I realize the Easter Bunny forgot to come ? hehheee, I guess I can always blame it to my MS but nope. Won't happen.
Filled the plastic eggs with chocolate eggs the other day .. checked.
Bought stuffed bunnies and other things to put in their baskets when they come down for breakfast .. checked.
Shoot ... I was writing this blog for my children to read one day ... Oh well, hopefully they'll be old enough and the magic will be gone ??
Anyway ... just needed to put my thoughts out there.
Happy Easter everyone !!
Last Easter with MS !!! wahooooo !!

Wednesday, April 16, 2014

Thank you's before all the madness ...

Thank you to my husband for putting up with my imperfections. One day, after my diagnosed, when I asked him what was his mayor dissapointment with my MS. He said, to realize I wasn't perfect, as he always thought about me. Me ? Perfect ? Seriously ... I'm full of flaws but I guess I disguise them well .. haha. I thought he was going to say, we don't do the long walks anymore, you don't come outside and play with us anymore, etc. I guess the things that are important for me are totally different of what he thinks. Thank you Rob for always loving me, as my walking gets crappier every day, or I ask you to bring the laundry up and down. Thank you for putting up with me, God knows my level of patience runs low lately. I love you always.

Thanks to my children who put up with me too. Who don't laugh or criticize my slow speed on catching up. Who help me and hold my hand whenever possible. Who just give me hugs for the heck of it. I love you all more than anything. Always know that I'll go through this so I can be a better Mom.

Thanks to my immediate family in Chile, to my Dad. For not going into details about my MS. He just asks about my leg. How is it doing .. lol. Bless him. This helps me to think of this as something foreign that will abandone me when I have the HSCT done.

Thanks to my husband's family. For including me in everything and for keep life going. Feeling normal is such a gift sometimes.

For those interested in my painting project .. I've conquered half of it. Today I finish the dining room and oh, it looks awesome already !! Totally worth the effort, the pain in the legs and back.

And lastly, thanks to all HSCT'sers that have put out there the word. Such informative postings. All that they've lived ... thanks also for going on with life and somewhat forgot about updating blogs ... life DOES go on after this, we do go back to normal and do other things. We do forget a bit about this. That is balm to my ears.

:)

Thursday, April 10, 2014

Fresh coats of paint ...

So just to keep you up to date on my Russia adveture, I have been given an admission date for hospital. February 23rd, 2015.

I'ts been very useful to follow the threads on the Russia group that has done their procedure there already and all the rest of us waiting to go. To read all the 'must brings' that would have never crossed my mind. Reading all this helps me incorporate this new hope in my life.
Apart from my husband and my children, nobody else knows about this big leap of faith I'll be taking. Yesterday I told a dear cousin that lives back home. And she only gave me hope, and was very interested to hear everything about it. I love you Paula !! You've always been my sister and always will be.

I finally started working in this house. We moved late August last year. It's beautiful. Bigger, more room, wonderful garden, huge driveway ... it looks like a landing strip .. hahhaa. Didn't want to start painting right away. Wanted to live in it before changing anything. Good thing cause in September I had my gallbladder taken out. And it took me a couple of months to recover ... then it was Halloween ... and then Christmas. Big production where we moved so we couldn't stay behind.
So in January I started painting. Giving new coats of bright colours to my children's three rooms. To be honest, at the beginning, I though well, may as well start painting now. Now that I can still do it. Not gonna lie ... I'm slow. But precise .. hahhaa. It takes effort to go up and down the little latter. But it can be done. Thank goodness the former owner left the latter he used to have here. It has a handle so it's way safer for me.

In the meantime I found this great group about HSCT ... and now that I started my latest project (living room and dining room) I'm not painting cause I still can. I'm doing it to remember this part of my life in the future. And one day be able to think 'yeah, I did that, and I had MS'. I want it to remind me that if you work hard at something you can do beautiful things. It will keep me grounded when I get better.
Because I will.

Tuesday, April 1, 2014

On my road to Russia ...

Well .... I made it out alive from Disneyworld. First thought ... thank God I had a stroller to push !! hhahhaha. Seriously, thank God !!
Glad we had that time off and now I can begin my road to feeling better.
This week has been very exciting, I got accepted to go to Russia to have the HSCT treatment done. I don't think it has sunk yet, but I'm very excited. It seems I'll be going in late February 2015.
I'm very hopeful that this disease will stop sneaking in on me. And that sometimes it's a month and I'm walking a bit worse. I remember last year I would celebrate with a good cheer when I would feel this bust of energy and will finish the stairs without holding on the railings ... lol. Well, that's not happening anymore, but I'm still doing stairs, that's good.
So, that's where I'm at.
Starting the road to recovery.
:)