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Monday, January 19, 2015

Bye Bye Tecfidera !!

Yes, another milestone done with !!

Yesterday I had my final dose of Tecfidera. A newer drug recommended by my Neurologist to delay the progression. I started taking it in December 2013. So after a year has gone I feel I can evaluate it. I had the common side effects, intense blushing, more common at the beginning. My face would just turn red and feel very hot for about 20-30 minutes. In the summer at least I could mask the symptoms with just feeling hot with the weather ... in the winter, not so much. Lol. I guess if I'm optimistic, I would say I didn't really have any relapses. No new MS symptoms which I appreciate. But also if I look on how I was a year ago, I feel my balance has slowly deteriorated, so has my walking. It's getting harder to go up the stairs and some falls that could have been serious have been luckily stopped through 'furniture/wall surfing' in the house. So, all in all ... not such a bad year. Thank you Tecfidera ... but now I officially FLIP it to you too ..  off to the garbage you go !!

I have no fears to be off it. My body needs to be clean and be free of any of this for HSCT. 




On a different front, another of my milestones has gone too. My littlest one turned 4. Big girl. No more babies in this house, just like that. It feels great but it's also a bit sad. Where does time go. I wish her first memories were of a Mom that can do everything with her. But she's grown accepting her Mom uses a cane, can't run or play catch. She's also learned that it's a great help to go get things for me upstairs, and she does it willingly, still .. lol. I can't teach her how to skate or run on the grass with her, but I can still tickle the hell out of her though .. hahhaa.

My 'bag to Moscow' has filled up slowly too. Found some instant noodle soup on sale. Santa brought me the adapter I'll need for my ipad and some slippers. Checked, checked and checked !! We're down to the basics now.

62 days ...

:)

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